I'm 25 this year. It's been 15 years since all of this started. I'm writing this blog hoping it can let others out there have a glimps of what their life will be, or what their loved ones are going through. Its not easy living with Stargardt's but then again there are alot worse things in life.
For those of you that have no idea what Stargardt's Disease is, its a Age-Related Macular Degeneraton. It usually occus in children or young adults. It is a heriditary gene mutation taht is pass on by both parents. The parents may be carriers but not suffer from this disease. It is estimated about 1 in 20,000 people have Stargardt's disease. If you want to learn more about Stargardt's Disease I will put up more links that help describe the disease in futther details.
Why write this blog?
Since I am a Stargardt's patient, I've always kept an eye out on latest news and research or possible treatments. Although skeptical, it never hurts to keep up to date. I've noticed that there are many people asking about stargardt's or parents that just found out their child has stargardt's.
I figured, why not help these people, share some of my experiences, thoughts, and maybe, just maybe, it can make their lives a little easier.
Tuesday, September 23, 2008
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